About the project
The World’s Rarest Dictionary is a project that aims to encourage others to listen, understand and reflect on the experiences of people affected by rare diseases. From those who actually live with a rare disease, to their family and friends, caregivers and researchers working across these areas.
We aim to do this by creating new words and, eventually, an entire dictionary – The World’s Rarest Dictionary – as a home for these words and their definitions.
Our goal is to continue this campaign for years to come and truly capture the unique experiences that living with and researching a rare disease brings, eventually giving way to a new era of more relevant and relatable vocabulary for rare diseases.
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